Media Coverage

NPR “Shots” Blog: Families Isolated By Rare Genetic Conditions Find New Ways To Reach Out, by Kat Snow.

Seattle Times: Needle in the genetic haystack: How a new UW website is helping families, scientists, by JoNel Aleccia.

Catalyst for Cures: UCSF Program Gives Hope to People with Rare Diseases, by Dan Fost.